Sunday, March 15, 2015

Home is where your stuff is?

Leslie is homesick
We moved a lot and my mom frequently said, "Home is where your stuff is." She possesses real skill at making our stuff look like a home in about a week.  Curtains hung, silver polished and the first dinner party scheduled...our house was transformed.

I've never really been a "stuff" person, but we did bring our coffee maker and Organic Italian roast coffee, because life is just too short to go one day without the best coffee experience possible.  Therefore, we gave it our best shot to make Kahler Inn and Suites feel as homey as possible: to no avail.

As you know, I was told to lie flat all weekend.  Prescribed rest is a very good thing right now.  Generally, I despise it, but after those first two days, it hasn't been half bad (Ok, I'm lying).  Post-procedure instructions for the "spinal fluid draw" typically only require a 24 hour period of "trying not to bend or lift anything."  Because the dura hasn't historically healed well for me, I was instructed to, "lie flat as much as possible, not bend, don't reach and don't lift" until Monday morning. I can assure you, I have followed these directions perfectly because I am terrified of what I call "stand up headaches." I have the "lie down headaches" every night after about 5 hours (if I lay flat, but at home I have an adjustable bed that affords me a few extra hours now and then: thank God), so I wasn't seeking the: "trapped in bed with spinal fluid leaking out of my back" headache.

I'm definitely not a "Praise God when it's good" kind of person.  I am "Praise God all the time" kind of person. Tonight, I am praising God I have not had that awful headache experience.  I doubt God micro-manages my life so much that He had a hand in the direct outcome of this procedure, but I do believe He had a hand in bringing me to David, bringing me to Louisiana, bringing me to a random rheumatologist who knew someone at Mayo Clinic who could get me in, and therefore: getting me here. I praise Him for being the greatest Director of all eternity.

I sort of wish He would micro-manage tomorrow, because I have high hopes for the outcome.  Tomorrow's agenda begins at 7:00 a.m. with the Department of Ophthalmology. I'll be with them through 9:00 a.m for testing including a visual acuity check and the rest of the time is spent doing "eye photography." Then we'll go to Clinical Neurophysiology for a "Sensory Evoked Potential" test, where they glue electrodes to my head to determine how my brain is communicating with the rest of me.  At 11:00 I'll be getting a CT scan of my head and neck. I'm pretty sure they have more CT scans of my head than there are cats to scan.

Ok - let's all pause for a moment and appreciate how hilarious that previous sentence was.  Go ahead..get it out of your system.

I'd like to say that we're off until 2:30 when we have a follow up consultation with the Cardiologist, but we'll actually be stalking the scheduling associates at the Department of Ophthalmology/Cornea team and the Section of Speech Pathology, so we can reschedule appointments they made for me on March 19th and March 26th.  I'm VERY sure we cannot stay in this hotel that long.  Despite the lovely kitchenette and view of downtown Rochester, we both long for our view of Lake Claiborne.  Besides, I'm actually scheduled for surgery to have my spinal cord stimulator removed (there at LSU Hospital) on March 26th, so we will be back at the lake by then.  We were hoping to make a stop in Austin on the way home, but if we have to stay through Thursday, we'll have to skip my friend-fix in Austin.

These details must be boring you to tears, but to tell the truth, it's a whole lot easier to focus on getting home rather than blowing my mind while I consider the little cornea dystrophy disaster.   Indeed, "There is no place like home" (L. Frank Baum, The Wonderful Wizard of Oz).  Leslie is looking "homeward bound" too.

Deuteronomy 20:6 
"Has anyone planted a vineyard and not begun to enjoy it? Let him go home, or he may die in battle and someone else enjoy it."



Friday, March 13, 2015

P&P



What does P&P mean to you? Policy and Procedures? Party and Play? Postage and Packing? David thought it meant someone had drank a lot of water and needed to Pee... and Pee some more!  It means Protection and Provision.  Two promises made by God.  These words were taught to me by my friend and hypno-therapist, Marilyn Ross.  She has been a spiritual mentor and as such a conduit of God's grace.

Ulysses "Mac" McLester was a professional and 12 step mentor to me. He was an incredible teacher.  He taught me acronym for FEAR: False Events Appearing Real.

Sydney (my daughter) is the boss of me.  She always has been.  She is my spiritual ground wire and mirror when I need accountability.  She was the one who put me on my "F" diet and thankfully gave me a hiatus today (prepare yourself).  Therefore, you need to know the other acronym for fear is: Fuck Everything And Run.

Aubrey is my youngest daughter and she is my little monkey.  She came into this world swinging, so I knew she was a lot like me.  She has Ehlers Danlos too.  She has taught me about courage. She feels fear every day and she keeps pressing on.  She makes me want to be a better mom.

Fear is future thinking and the further we think about the future, the more likely we are to scare the shit out of ourselves. Unfortunately, some faulty thinking and actions can be the result of those feelings.  When scared, we believe something IS true; it FEELS true, but there is little evidence to indicate TRUTH.

This morning I wanted to FUCK EVERYTHING AND RUN because I was scheduled for a lumbar puncture (which I have since decided they MUST change the name to spinal fluid draw.  I mean...what an awful name....PUNCTURE!) So I started to write this blog before I left because my writing is often my way of praying.  Then, of course, I got a text from my fellow spiritual warriors (Sydney and Aubrey) and they both just reminded me, in their own unique ways, that I should be praying.  So I wrote and I prayed.

There was so much on my schedule today but I was consumed with that one procedure. Fear is a nasty thing.  See, I have had several lumbar punctures throughout my life and spinal surgeries that involved the dura (the membrane that surrounds the spinal cord), and all have ended up with pretty gnarly results. This SEEMS like evidence to be rightfully scared.

Prayer brings presence and God has proven in the past two years that He is in charge of my life. And as Marilyn predicted and reminded me of on a daily basis, He met every single need associated with my Protection and Provision.  EVERY single need.  Many of you helped meet them, so you know.

Doubting that He had "gone before me" (thanks RB) today was pretty frustrating. Sometimes, I feel like I have a little too much in common with ole' Peter, who denied Christ 3 times before that damn rooster crowed.  ADHD moment: I saw two turkeys in the middle of the street in downtown Rochestor today.  I sort of thought God didn't have any Roosters handy, so he sent two turkeys. I tried to not take offense.

I am not Peter and I had the procedure done. I have never been more tired than I am tonight, and as you can see from the picture above, my protector (Leslie) AND my protector and my provider (David) have long since surrendered.  But I had to write about why I wasn't supposed to be scared about the spinal fluid draw today.  See,  I had two other appointments immediately after the procedure: one of which I missed entirely because they took the time to ensure I would not have a dura leak and made me lie flat on my back for over an hour.  The spinal fluid draw will determine if I have MS, so I'll let you know when I know those results.

The reason God had me focusing on that first procedure was because the hardest one turned out to be the appointment with the Neuro-Ophthalmologist.  That crafty fellow had me distracted!  They did tests never done before and spent over 3 hours with me.  Unfortunately, the doctor discovered I have Fuchs Endothelial Corneal Dystrophy.  She said she wasn't a cornea specialist and would have to refer me to lots more testing next week (Oh yeah!), but that I had a moderate case for sure. This is a progressive disease, where my normally visually challenging mornings and painful eye, will begin to extend further into the day. Eventually I will lose my eyesight. She is referring me to the cornea specialists to develop a treatment plan and assess if I am a good candidate for cornea implants.

It's funny because I am not scared.  I am sad.  I am sad that there will be a day that I will not be able to see the faces of those I love the most.  But I have lots of days I will be able to see them and I won't let that ultimate day of NOT....interfere with today's YES.  In fact, the entire time I was getting my LUMBAR PUNCTURE (that turned out just fine, except that I am exhausted and have to lie flat for the weekend), I listened to the ipod Aubrey gave me for mother's day and ONLY played "All is well with my soul" throughout. I visualized the trip Sydney is planning for us this fall: zip-lining with my sweetie in Costa Rica! And lastly, I twirled my wedding ring.  The doctor said I was the best patient he ever had.

Well, fuck.  

All kidding aside, He's got this and as Sydney said, it's ok to be a little sad tonight, but I have to stay here at Rochestor until they get through all this complex stuff and fix me up for the journey ahead. Yes, mam.

Peace,
Su

Joshua 1:9 (Thank you, Lisa Thorne)
"Be strong and of good courage; do not be afraid or dismayed, for the Lord your God is with you wherever you go."



Thursday, March 12, 2015

Slap Happy



Today was a big day, but thankfully, not quite as busy as yesterday.  With take-out Chinese in our bellies, I fear we will not be awake long.  I think we both may be more tired today, simply because yesterday was so hard and we just didn't recover.  I knew David had crossed over to "exhaustion" when we both started cracking jokes with the cardiovascular office receptionist. I ALWAYS think I'm funny, but David is slightly more modest: in case you don't know that about him. The receptionist seemed to appreciate our humor as we began to reflect on the fact that there were over 60 Cardiologists and therefore, no way any of them could feel like they were somethin' special.  David speculated that the doctors would face retirement before they ever completed a progressive dinner.  I was sure they would all be fat if they had a mandatory progressive dinner and would therefore all die of heart attacks.

Don't judge.  We are exhausted. I honestly had no idea how we were going to get out of the hotel room.  Thanks to my great motivating friends, I gathered a bit of courage and headed out the door for yet another round of blood tests.  This time, they drew blood to do the genetic test for Ehlers Danlos Type IV (Vascular Type).  The results for that test will not return for 4-6 weeks and based on what I learned today, I will apparently learn of the outcome via the Mayo Clinic online medical records app.  This has been really great to have, especially since my appointments seem to change throughout each day, but I'm pretty sure I'm not too excited about hearing the results of that test in this manner.  Since it's impossible to see the doctor face to face (I actually don't like that one...so that's good), I guess getting the news over the internet is the next best option? I suppose there is no good way to get that news if it reveals that I have Type IV.  I'll leave it to you to google Ehlers Danlos Type IV, because it's pretty darn depressing to consider, much less write about.  Let's just leave it at: I don't want to have it - at all.

After the vampires were done with me (she was a very nice one today), I headed to do a "visual evoked potential" exam.  Here, they glued electrodes to my scalp and ear in 5 different places. Ryan, the examiner, stated that he was testing my central nervous system and since the nerves in the eye were the closest to the brain, they were therefore "first" in line regarding communication with the brain. They were testing how my eyes took images and flipped them from upside down, to right side up.  Did you know that your eyes initially see images upside down? Your brain then takes the images and flips them around so you can interpret what you are seeing in the real world.  David says, every photographer knows this and that cameras actually do this as well.  I didn't know this and I sure didn't like staring at a black dot on a screen with moving black and white lines.  My eyeballs were wailing by the time I was done. I don't know if I "passed" or not, but I imagine I will get those results tomorrow when I see the neuro- ophthalmologist.  Ryan, the examiner, was not a Longhorn fan, so we didn't linger.

We headed to the radiology department in the "Gonda" building.  We were "gonda" eat lunch first, so we enjoyed "Freshens" one more time and dropped by the Chocolate Oasis.  We were gonda eat better today, but we decided white chocolate almond bark was a better plan.  The shoulder X-rays went off without a hitch. I was surprised they didn't make me hang onto a gallon of milk and make my shoulder dislocate, in order to show the best view of my shoulder woes. This was how they determined my shoulders dislocated back when I was 13 years old. I explained this to the radiologist tech and she grimaced and said that was in the "dark ages."  Huh....shocking.

We scrambled out of there and barely made it to the "Rehabilitation Doctor".  No, I had never heard of that kind of doctor before either.  She was pretty great and had actually read all the notes from all the previous doctors before seeing me!  OMG!  She spent over an hour with me just trying to assess what I was capable of, what type of rehab I would need and what other types of devices or assistive technologies would be helpful in my recovery.  She will be the doctor who will help me qualify for a mobility service animal.  I am ready to make that commitment now and since it's likely to be at least a 2 year wait before I get a dog, I will have to go ahead and get moving on that process now.

Last but not least, I picked up my pulmonary function test device that I will sleep with tonight.  The pulmonary function test is simply a finger sensor that is strapped onto my now UNPOLISHED fingernails (yes, I just paid for a manicure 5 days ago) and will measure my oxygen levels and pulse all evening long.  The purpose of this test is to determine if I might have sleep apnea.  Further sleep studies are being considered.

Unfortunately, the schedulers don't seem to recognize that we are paying over 100.00 dollars a night for the hotel and have scheduled more tests and consultations through next Thursday the 19th.  We are trying to have this appointment moved, along with one they set for me in April and one in June.  I like Mayo Clinic just fine and Minnesota is thankfully breaking warm temperature records, but I really don't want to come here three times in one year.  Costa Rica is coming to mind....

My Gram came to mind today too, as we lost our minds at the Cardiologists' desk late this afternoon.  Gram often got "tickled" and began laughing over something so completely mundane that I wondered if she might be sipping sake (That one is for you, Pop).  Frequently, she laughed so long, it became hilarious to watch her so amused with herself that we would also start laughing at her and her failed attempts to stop laughing: and the laughing would continue.  I think they call that "Joy".

Doesn't it just prove that God is the great Director, when we can wait at the cardiologists' desk and find joy?  We laughed so much at each other that it was contagious. They didn't ask us whether or not we had traveled to Africa or been exposed to someone with Ebola....they asked us where we were from and laughed with us about the insanity of narcissism and joy of humility.

Peace,
Su, David and Leslie

John 16:33
"I have told you these things so that in me, you may have peace.  In this world, you will have trouble. But take heart! I have overcome the world."


Wednesday, March 11, 2015

Physical Health NOT Mental Health



The Mayo Clinic does an awesome job at ensuring my physical health needs are met.  A volunteer even pushed me through the breakfast line, while also recommending how to grab great yogurt during the day. Little did we know he was preparing us for the fact that there was NO WAY we would have time to eat lunch.  That yogurt really was great and its greatness was greatly accentuated by starvation and desperation.

There really isn't an effective way to describe today, but I will tell you it was mostly wrapped by incredibly nice people.  However, one young woman in the genetics department discovered it really wasn't wise to tell me how the fact that my Gram had to sleep while sitting up, wasn't IMPORTANT.  Yowza! I guess I needed a good cry, because I did just that all the way through my delicious yogurt.

Now, the following is boring, but many of you want these details.  For those of you who are bored to tears when someone starts venting their medical woes....please just skip to the last paragraph.

Our day began with fasting at 6:30 - 7:30 at the laboratory.  They took my blood and urine and I have no idea what they're doing with either.  I can tell you, as a woman, it never gets easier to submit a urine specimen, but they sure make it easy to turn it in, with drop off locations throughout the hospital.

Then we grabbed that quick bite for breakfast before heading to get a chest x-ray, an electrocardiogram and to meet with the Cardiologist, who deemed himself my "quarterback" (7:30 - 11:00). He decided my chest looked good.  Nice. I guess I don't need any further work there.  David agrees.

The Cardiologist ordered a heart ultrasound just to look for any aneurysms that are often associated with Ehlers Danlos Syndrome (EDS). He also made me an appointment with the Mayo Clinic Neuro Ophthalmologist.  That was the best news I had all day.  I want to save my vision pretty badly, so that's likely the only shot I have at that.  David and I were both super duper pumped.  That appointment is Friday.

We ran/rolled from that appointment to the Family History and Genetics appointments (11:15 - 2:00), where all the information all of my participating family members have sent me over the past two months, was entered into the computer.  They really seemed to focus on EDS and where I got it, how I was tested for it (back in 1980 at the Oklahoma City Children's Hospital via a skin biopsy), what the results showed and what further tests need to be done.  In the final analysis, it was determined that I need another genetics test to determine if I have EDS - type IV.  This is not a good thing to have.  It is called EDS - vascular type and generally ends with some type of gnarly death caused by an artery dissection.  David is trying to find out if the insurance company will cover the cost of this test as it is over 2000.00, but we will have it done either way because there are definitely precautions that should be taken if I ever need to have surgery again.  So, he ordered another blood test to be used for that determination.  We'll do that blood draw tomorrow since I never made it down there today, like I was supposed to do.

I never made it back to the lab because I met with the neurologist from 2:30 - 5:30.  It hurts me to write that because I am struggling to stay awake to write this blog.  This doctor was really excellent and offered all the "bedside manner" the geneticist missed out on learning during his internship.  In short, he also said I was "complex" and I did not punch him out. I was POSITIVE and acted like that was the first time I had heard this lovely descriptive word.

He ordered a sleep study, a lumbar puncture (to assess me for spinal fluid pressure and Multiple Sclerosis), and appointments with Clinical Neurophysiology, speech pathology and the headache specialist team in the Neurology Department (that last one happens in June!).  The appointment with Clinical Neurophysiology will assess my cognitive deficits that have increased over the past 2 years.  He performed a series of cognitive function tests while I was in his office today and the outcome was sort of no bueno.  I don't like talking about that one, but I admit that I have expressed concern to David on several occasions, as I am noticing several symptoms that are a bit alarming.  And that's all I'm gonna say about that: not gonna talk about that either.

The speech pathology appointment is scheduled for next Thursday the 19th (I know...very bad....we are trying to get an earlier appointment) and will assess a treatment plan for my speech impediments that have continued to decline over the past two years and basically make me sound like I had a stroke.  Yes, I may have had a stroke as one doctor indicated that I did, but they all double talk each other and all I know is that I can't talk worth a shit.

David rushed me back to the hotel room and ordered pizza that I have thoroughly devoured while writing.  I have thrown the ball for Leslie about 200 times and am ready for bed.  Looking back on the day, I see how physically draining this day was, how tomorrow will also be pretty rough, but my mental health is not really their chief concern.

It was the concern of all of you who wrote such great notes in reply to my facebook post this morning, texted me throughout the day, mailed my daughter's cellphone to her, called me, posted very, very, corny, mushy, supportive messages on facebook, and last, but certainly not least, sent me beautiful flowers and a loving note (see above).

Therefore, my mental health is in great condition. My brain is in need of rest, so I'll catch up with you again tomorrow.

Peace and Love,
Su, David, and Leslie

Isaiah 41:10
So do not fear for I am with you;
Do not be dismayed, for I am your God.
I will strengthen you and help you;
I will uphold you with my righteous right hand.
 

Tuesday, March 10, 2015

Leslie



Leslie is a big hit wherever she goes, but she doesn't usually appreciate people approaching me.  That's sort of been a problem.  Thankfully, the people in this hospital-town seem to understand pet boundaries and have only been guilty of nice commentary and admiring her from a distance: sweet.  It's always a surprise when someone recognizes she is a German Shepherd and not a black lab.  I don't even see the resemblance other than the fact that she's black.

This German Shepherd really believes she might be a person.  She pulls me along in my wheelchair when I say, "Take me."  If I'm in pain or upset for any reason, she basically mauls my poor sweetie's face, until he comes to my aid. David's gotten REALLY good at anticipating the assault and blocking her as she dives in for the chomp.  Because of her long history of jumping up and eating people's faces like puppies do (she doesn't seem to realize that it is not quite as cute now) and her tendency to alert David with this same beloved behavior, she has earned the high honor and doggie designation: face chomper.

Today, Leslie escorted me from the hotel room to where my first appointment will be tomorrow at 6:45 a.m. She pulled the chair the entire way (about a 3 or 4 block walk), all underground, in the Mayo Clinic subway level walkway tunnel.  She loved the ramps that afforded her the chance to break into a run.  David just prayed that one of us knew where the brakes were.  After a 20 minutes adventure through the tunnel system, we arrived at our check-in desk, huffing and puffing.  Well, actually, Leslie was huffing and puffing. I was nursing my friction wound from steering with a bare hand on a metal wheel.

The Mayo Clinic thought of just about everything, so we were happy to discover actual cups at the water fountain.  Leslie got the first drink and gulped down two cups in no time.  The water splashed on David's shoes dried rather quickly.

I mention "just about everything", because when we stopped at the Mayo Clinic store to buy a souvenir t-shirt, we could not find a German Shepherd sized shirt, collar, dog bowl, or even a scooby snack.  Damn.

Leslie has passed out for the night.  David is in NCIS la-la land. I am trying very hard to be brave and focus on just this moment in time that is filled with God's love, text messages from friends' galore, and the best support team of all time. Without a doubt, I am blessed beyond my ability to reconcile.

Genesis 2:19 says, "Now the Lord God had formed out of the ground all the wild animals and all the birds in the sky.  He brought them to the man to see what he would name them; and whatever the man called each living creature, that was its name."  And so, it is with God's grace that I hereby Christen all Black German Shepherds as The Face Chomper.

Peace!


Monday, March 9, 2015

Honk and Wave




David asked why we honk and wave when we cross the state lines.  We also lift our feet while crossing rivers and hold our breath as trains pass or while driving through tunnels.  These are very good questions.

We have loved coming to know each other over the past year.  Our first year has been the sweetest love story of all time.  No, seriously...of ALL time. Ok, except, of course, the divine love story of our Lord Jesus Christ.  He definitely gets the award for the most sacred, intimate love story of ALL time.  But, I'm here to tell you, David and my love story is pretty darn wonderful: simply because He undoubtedly brought us together for the sole purpose of acting as conduits of His love.

I'm not feeling all mushy and love-struck because I'm scared shitless about this trip: #MAYOnnaise#Mayo Clinic.  No, this is the real deal.  It is enduring and not one day passes that I don't stop and praise Him for providing for my provision and protection during a time that would have otherwise been devastating.  In fact, today, David offered his support and asked leading questions so I might be able to finish my own health history.  I have been combining my family's health histories over the past month, into a concise document the geneticist at Mayo can use to help refine my treatment plan.  That was plenty hard, but writing my own health information has been crazy, ridiculous, absurdly hard.  Don't ask me why. I don't know other than it's a longer list of problems, traumatic events and surgical mishaps than I really enjoy revisiting.

Having it done is a huge relief and even Sheila Weekly (my dear nurse practitioner friend), who originally guided me toward the necessity of making this easy for the doctors to review, would be very pleased with the outcome.  I have noted the questions I need answered from the doctors there at The Mayo Clinic.  Their answers will likely be much more challenging than the ones I had to answer for David today.  To top it off, I'm not really sure I'm ready to hear their answers.  Apparently, God thinks I am and has gifted me with my beloved husband and LIVING partner.  Leslie will offer good comfort too, as we all curl up in bed each evening after a full day of appointments.

ADHD distraction....we just entered the great state of Minnesota and we honked to say hello and celebrate or safe arrival.  We waved in all directions to greet our new friends and say goodbye to those we just left. It's really just good manners, you know?   These answers are so much easier to hear! In fact, Sydney and Aubrey dreamed up all these travel rules!  That's the main reason we do them: because they said so.  Isn't that great?

We'll be staying at the Kahler Inn and Suites there in Rochestor. Apparently that's the hospital's hotel and is the most convenient place to stay, and even has a park across the street so Leslie can romp around.  Yes, we brought her ball. We'll arrive in about 30 minutes and we plan to just settle in and order out. I think David may be as tired as me now, so we'll flip a coin and see who takes Leslie down for her first walk.

Tomorrow we'll just take the day to rest and navigate our way to my first appointment on Wednesday morning at 6:45.  I should buy a horn for my wheelchair so I can honk and wave when I come into the hospital for the first time.  What do you think?

Peace!


Sunday, March 8, 2015

Readiness

"Ready...Set..." These were two of my favorite words growing up.  It meant the games were about to begin and being the youngest of five kids, it was essential to jump the gun and get that leading edge.  Defeat was never acceptable. 

It still isn't.  Only, over anxiousness usually lends itself to false starts and since this is definitely not "a sprint to the finish" situation, I'm tasked with evaluating my readiness for another leg of the marathon and facing the fact that I'm not quite in the shape I used to be.  

The facebook post "Ready Set Go," seemed to stir quite a reaction. I think all of you are just about as ready for this leg of the journey as I am. That feels pretty great to have all of you cheering me along. I know David appreciates it just as much.

We enjoyed two nights' rest in Dallas.  We detoured West so Sydney could intercept us, pick up Charley (Aubrey's dog) and give her mother a big dose of much needed daughter's love.  That has been, by far, the best medicine I have taken thus far. (READY!) I'll get my "Aubrey Fix" when we return from Mayo and swing into Austin for a short visit before returning home.

We must make it back to Louisiana by the 22nd of March as my pre-op stuff begins the following day. I'll be having surgery on March 26th to remove the device that has tormented my spine since its faulty placement on August 7, 2013.  I'm not looking forward to that surgery at all, but the surgeon is a Mayo Clinic Med School graduate and very familiar with Ehlers Danlos Syndrome. She feels sure removing the device will be in my long-term best interest, but was quite frank in her recovery outlook. She believes the next year and a half will be required for a full recovery. She did not beat around the bush regarding the risks, but since I have already experienced paralysis as a result of this process, I'm just hopeful I'll have less pain.  I went ahead and ordered my new lightweight wheelchair that sports more comfort, off-road durability, and Longhorn colors!  Hook Em'!  SET!

As I write today's entry, we are approaching Kansas City, where we will spend the night. Leslie is anxious to get out of the car and join us for some great barbecue at Fiorella's Jack Stack Barbecue restaurant.  Joe's was closed and that's the one we were aiming for....so maybe on the flip side, as they said on the ole' CB radio, back in the day!  

10-4 good buddy...we'll catch you on the flip side of today. 10-7 Super Su.

GO!

Amen